What We Do
The Golden West Chapter of The ALS Association symbolizes the hopes of people everywhere that amyotrophic lateral sclerosis will one day be a disease of the past, conquered by the dedication of thousands who have worked ceaselessly to understand and eradicate this perplexing killer.
Until that day comes, the Golden West Chapter relentlessly pursues its mission to help people living with ALS and to leave no stone unturned in the search for effective treatments and cures for this progressive neurodegenerative disease.
We are here to ensure that no one is alone when facing ALS, through our evidence based wraparound model of care. The Golden West Chapter is committed to enhancing the quality of life for people living with ALS through the many programs we offer to individuals and families affected by ALS at no cost. We understand the value of being able to communicate, function safely at home, travel to ALS clinics for comprehensive evaluation and treatment, and so much more. Our programs are designed to meet these essential care needs, as well as the emotional needs of those in our community and caregivers.
The Golden West Chapter focuses on state and federal advocacy for research, health and long-term care, and caregiver support. The ALS community's involvement in advocacy has led to increased federal funding for ALS research at the NIH and federal funding for ALS research through the Department of Defense.
The ALS Association organizes the National Advocacy Day and Public Policy Conference each year. This event is the ALS community's primary opportunity to join together to educate members of Congress about the importance of stepping up the fight to conquer ALS through research, care, and support.
The ALS Association is the largest private funder of ALS research worldwide, and our efforts have led to some of the most promising and significant advances in the field. Since the 2014 ALS Ice Bucket Challenge, we have committed more than $122 million to research.
Collaboration is the cornerstone of our research program. We partner with academia, industry, government, and other nonprofit organizations and lead by spurring long-lasting collaborations among researchers across all sectors, leading to globally shared data, protocols, and research samples to accelerate research progress.
Public Education & Awareness
Through community outreach, media relations, social media, and more, the Golden West Chapter raises awareness about ALS year-round. Our website is a vital source of information for those battling ALS and for people looking for the latest news and information about the disease. We provide an opportunity for anyone touched by this devastating disease to gather and connect with others through our many community outreach events. In addition, our relationships with partner organizations, such as Major League Baseball and with the news media, we are proud to spotlight on our ALS community and help raise ALS awareness and support.