News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the Golden West Chapter.

Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the Golden West Chapter of The ALS Association. For any media inquiries, please access this dedicated page

A message from …. José Fajardo: There is hope to end ALS

November 12, 2021

Aloha, I recently shared my story for the Golden West Chapter’s Walk to Defeat ALS. For the first time ever, teams and participants representing 31 California counties and the entire…

The Brain Bot Harnesses Therapeutic Potential

November 2, 2021

Did you know that it is possible to look at MILLIONS of cells over many months at one time to track their health? Dr. Steven Finkbeiner at the Gladstone Institutes…

Spotlight on … Leila Sulentic, Team Captain and Former Event Chair, Jim Tracy 5k to Defeat ALS

April 3, 2021

San Francisco University High School graduate Leila Sulentic and her family have been battling ALS for as long as she can remember. “My first experience was when I was around…

Spotlight on…. Stacy Title
Trailblazer in Hollywood and as an ALS Advocate

March 8, 2021

“I have always believed and always taught my kids they can do whatever they want. I’ve tried to live that life. Why should I stop doing what I love?” –…

The ALS Association Support Paved the Way for Antisense Therapy

November 2, 2020

Antisense oligonucleotide (ASO) therapy is a groundbreaking concept that has drastically changed the gene therapy landscape. In the 12 years since the first study was initiated in ALS, ASO therapy…

ALS 101 – Educational Video Series

March 6, 2020

The ALS Association Golden West Chapter is proud to introduce a new educational series, entitled ALS 101 that is intended to serve as a comprehensive overview about the disease. Our…