News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the Golden West Chapter.

Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the Golden West Chapter of The ALS Association. For any media inquiries, please access this dedicated page

AMX0035 Approved! How We Got Here and What Comes Next

Blog post from the ALS Association. View Original Source. In the summer of 2014, millions of us took part in the ALS Ice Bucket Challenge. Celebrities, friends and family members…

The Golden West Chapter of The ALS Association to honor Jeremy Merz as the Dean and Kathleen Rasmussen Advocate of the Year

The Golden West Chapter of The ALS Association will honor California state healthcare advocate, Jeremy Merz, as the Dean and Kathleen Rasmussen Advocate of the Year at their Champions for…

The 2022 Greater LA Walk to Defeat ALS® Takes Another Step To Unlock Lou Gehrig’s Disease

The Golden West Chapter of The ALS Association hosts the 21st Annual Greater LA Walk to Defeat ALS on Sunday, November 6, 2022 at Exposition Park in Los Angeles. The…

The Golden West Chapter to honor champions in the search for treatments and cures for ALS

The Golden West Chapter of The ALS Association will host their Champions for Cures and Care on Friday, January 20, 2023 at the Hyatt Regency San Francisco Airport in Burlingame.…

Medicare Open Enrollment Begins October 15—Understanding Your Options

Medicare open enrollment begins this Saturday, the period when individuals may add, drop, or make changes to their health insurance coverage, with selections remaining in effect for the next full…

FDA Approves First ALS Treatment Funded by Ice Bucket Challenge

The Golden West Chapter celebrates the Food and Drug Administration’s (FDA) announcement of approval of RELYVRIO (formerly AMX0035) as a new treatment for adults living with amyotrophic lateral sclerosis (ALS),…

Public Comments Filed As FDA Reconvenes Advisory Panel

Today, we filed comments with the FDA imploring them to ask the right question when it reconvenes its advisory committee in September to consider a new drug application (NDA) for…

Pat Dolan: Mapping the future of ALS Care, Cures, and Community

When Pat Dolan was diagnosed with ALS in July 2016, he knew the life he thought he had planned would be forever changed. He and Mara, his wife of 24…

Tell Medicare Why Seat Elevation Matters to You

Submit you comment HERE. Seat elevation systems in power wheelchairs help people living with ALS, but Medicare does not cover these important mobility devices. After three years of requests from The…