News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the Golden West Chapter.

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FDA Committee Unanimously Recommends Accelerated Approval of Tofersen

March 22, 2023

The FDA Peripheral and Central Nervous System Drugs Advisory Committee voted 9-0 that a reduction in plasma neurofilament light (NfL) concentration is “reasonably likely” to predict clinical benefit of tofersen…

Genetics and My ALS

March 17, 2023

By Larry Falivena Larry Falivena is a member of The ALS Association’s Board of Trustees and is living with ALS. Today, he is sharing his unique experience with the disease…

Congressional “Dear Colleague” Letter Circulated to Increase Federal Funding for ALS

March 16, 2023

The U.S. House and Senate are preparing legislation that determines how much will be spent on research. It’s important that ALS research requests are at the top of the “must…

Celebrating women making a difference in the fight against ALS

March 10, 2023

Women’s History Month (WHM) has been observed in the United States every March since 1987, and is dedicated to raising awareness of women’s contributions to history, culture, and society. A…

Remembering Judy Heumann, disability rights leader (1947-2023)

March 8, 2023

The Golden West Chapter joins the world in mourning and celebrating the life and legacy of disability rights activist Judith “Judy” Heumann, who died March 4, 2023. Known as the…

ALS Association Submits Public Comments in FDA Review of Tofersen

March 8, 2023

The ALS Association submitted comments today to the FDA’s Central and Peripheral Nervous System Advisory Committee, urging it to recommend approval of tofersen for people with ALS linked to a…

Bay Area theater director perservering with ALS

March 7, 2023

East Bay theater director Erin Merritt is living with the debilitating effects of ALS, the degenerative nervous system disorder also known as Lou Gehrig’s Disease. Even though she struggles to…

Bay Area theater community rallies behind ailing director

March 7, 2023

Erin Merritt has been a powerful force in Bay Area theater for decades, as a director, actor, producer and as someone who all-around makes things happen. Founder of the all-female…

March 2023 | Monthly eNewsletter from the Golden West Chapter

March 3, 2023

This month, in celebration of Women’s History Month, we highlight women whose efforts are leading the way in raising awareness and support for our ALS community and our mission. Please…