News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the Golden West Chapter.
Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the Golden West Chapter of The ALS Association. For any media inquiries, please access this dedicated page.
A Focus on Quality of Life: The Occupational Therapist Role in ALS Multidisciplinary Care
In broad terms, occupational therapy focuses on a person’s ability to perform activities of daily living—to live life to its fullest. For people with ALS, an occupational therapist (or OT)…
April 2023 | Monthly eNewsletter from the Golden West Chapter
Our April eNewsletter is in your inbox now or you can view it online! April is Volunteer Appreciation Month and the Golden West Chapter celebrates all who have generously given…
Spotlight on… Annette Uribe: Family Caregiver and Financial Professional
As a young adult, Annette Uribe found herself in the role of primary caregiver as well as a primary decision-maker. When Annette was 22, her mother was diagnosed with pancreatic…
The Golden West Chapter Congratulates the 2023 Sheila Essey Award for ALS Research and the Richard Olney MD, Clinician-Scientist Development Award Recipients
Since 1996, the Sheila Essey Award for ALS Research has been presented to acknowledge and honor an individual who is making significant contributions and breakthroughs in the search for the…
Critical Importance of FDA AdComm Meeting for ALS Therapy NurOwn
NurOwn (BrainStorm Cell Therapeutics) is an investigational therapy made up of autologous mesenchymal stromal cells secreting neurotrophic factors cells (MSC-NTF) for the potential treatment of amyotrophic lateral sclerosis (ALS) and…
ALS Awareness Takes Center Court at NCAA Men’s Final Four and Championship
The San Diego State University (SDSU) Aztecs’ run in the NCAA Division I Men’s Basketball Tournament is historic for many reasons. It is the school’s first Final Four and Championship…
Cytokinetics Announces COURAGE-ALS Met Criteria for Futility at Second Interim Analysis
Cytokinetics recently announced the discontinuation of Phase 3 Clinical Trial of Reldesemtiv and thanks the people with ALS, caregivers, investigators, and clinical trial staff for their participation in COURAGE-ALS.
Brandon Crawford of the San Francisco Giants Wins Phi Delta Theta Fraternity’s Lou Gehrig Memorial Award
Brandon Crawford of the San Francisco Giants has won this year’s Lou Gehrig Memorial Award, sponsored by the Phi Delta Theta International Fraternity, headquartered in Oxford, Ohio. Phi Delta Theta…
Here’s Why FDA Committee’s Recommendation on Tofersen Matters to Everyone
The FDA advisory committee vote on tofersen Wednesday was an exciting and critical moment in the ALS community’s efforts to find new treatments and cures. The committee voted unanimously to…