News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and ALS Golden West.

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The Golden West Chapter Honors Biogen with the Essey Commitment to Cures Award

November 19, 2020

The Golden West Chapter presents the Essey Commitment to Cures Award to individuals and companies who champion drug discovery and development in the relentless pursuit of treatments and cures for…

The ALS Association Support Paved the Way for Antisense Therapy

November 2, 2020

Antisense oligonucleotide (ASO) therapy is a groundbreaking concept that has drastically changed the gene therapy landscape. In the 12 years since the first study was initiated in ALS, ASO therapy…

Sydney Caroll

May 12, 2020

The $6 Challenge Example! Youth Action participant Sydney Carroll donated the few dollars she had in her piggy bank towards fighting ALS and asked that others do the same. Today,…

ALS 101 – Educational Video Series

March 6, 2020

The ALS Association Golden West Chapter is proud to introduce a new educational series, entitled ALS 101 that is intended to serve as a comprehensive overview about the disease. Our…

Spotlight On…Rusty Selix Healthcare and ALS Advocate

November 7, 2018

“Like the morning sun you come and like the wind you go.”– from “Uncle John’s Band” by the Grateful Dead.  Throughout his life, Russell “Rusty” Selix has been told by…

Spotlight on: Dwight Clark and the San Francisco 49ers

June 8, 2018

On June 4, 2018, the world lost the beloved NFL legend, San Francisco 49ers Dwight Clark, to ALS. On the day of his passing, his wife, Kelly, announced the sad…

After an Epic Journey of 10,000 Miles, in Two Weeks, with Four Guys, in  One Car — The PanAmerica Returns to California

August 10, 2013

When Gary Galene’s father, Gilles, lost his battle with ALS in November 2012, he and his family found themselves unable to do an early return of Gilles’ leased 2011 Porsche…

Dr. Richard K. Olney, founding director of the ALS Center at UCSF, dies after an eight-year battle with Lou Gehrig’s Disease. 

January 30, 2012

On Friday January 27, 2012,  the ALS community lost a member whose commitment to cutting-edge research,  and personal dedication to help people living with Lou Gehrig’s disease was unparalleled. A…