News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the Golden West Chapter.

Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the Golden West Chapter of The ALS Association. For any media inquiries, please access this dedicated page

The Brain Bot Harnesses Therapeutic Potential

November 2, 2021

Did you know that it is possible to look at MILLIONS of cells over many months at one time to track their health? Dr. Steven Finkbeiner at the Gladstone Institutes…

Youth Who Are Taking Action Against the Fight Against ALS

May 11, 2021

Twelve-year-old Riley wanted to support a great cause. Riley’s father, who is a doctor, knew multiple people who had lived with ALS. When he told Riley that there are no…

Spotlight on … Leila Sulentic, Team Captain and Former Event Chair, Jim Tracy 5k to Defeat ALS

April 3, 2021

San Francisco University High School graduate Leila Sulentic and her family have been battling ALS for as long as she can remember. “My first experience was when I was around…

Spotlight on…. Stacy Title
Trailblazer in Hollywood and as an ALS Advocate

March 8, 2021

“I have always believed and always taught my kids they can do whatever they want. I’ve tried to live that life. Why should I stop doing what I love?” –…

The Golden West Chapter Honors Biogen with the Essey Commitment to Cures Award

November 19, 2020

The Golden West Chapter presents the Essey Commitment to Cures Award to individuals and companies who champion drug discovery and development in the relentless pursuit of treatments and cures for…

The ALS Association Support Paved the Way for Antisense Therapy

November 2, 2020

Antisense oligonucleotide (ASO) therapy is a groundbreaking concept that has drastically changed the gene therapy landscape. In the 12 years since the first study was initiated in ALS, ASO therapy…

Sydney Caroll

May 12, 2020

The $6 Challenge Example! Youth Action participant Sydney Carroll donated the few dollars she had in her piggy bank towards fighting ALS and asked that others do the same. Today,…

ALS 101 – Educational Video Series

March 6, 2020

The ALS Association Golden West Chapter is proud to introduce a new educational series, entitled ALS 101 that is intended to serve as a comprehensive overview about the disease. Our…

Spotlight On…Rusty Selix Healthcare and ALS Advocate

November 7, 2018

“Like the morning sun you come and like the wind you go.”– from “Uncle John’s Band” by the Grateful Dead.  Throughout his life, Russell “Rusty” Selix has been told by…