News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and ALS Golden West.

Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from Golden West. For any media inquiries, please access this dedicated page

2023 Napa Valley Ride to Defeat ALS and Walk

September 29, 2023

Watch the event programming of the Napa Valley Ride to Defeat ALS and Walk sponsored by our Accessibility and Inclusivity Sponsor, Mitsubishi Tanabe Pharma America.

My ALS Story – The Borba Family

September 22, 2023

Luis Borba was admired by many and was often referred to as “Uncle Louie,” from many family and friends. Luis developed a life in the Central Valley, and worked on…

Celebrating Tom Horton and Paddling to Defeat ALS

September 8, 2023

Our deepest gratitude to Golden West supporter Tom Horton, who participated in his 17th Catalina Classic Paddleboard Race to Defeat ALS on August 27, 2023. The annual Catalina Classic Paddleboard…

Mapping the CDC National ALS Registry

September 8, 2023

At the annual National ALS Registry Research Symposium, hosted by the Centers for Disease Control and Prevention (CDC), there was a special presentation on mapping to better understand the registry’s…

‘New’ ALS gene destabilizes neuron’s structure and nucleus

September 8, 2023

The viral ALS Ice Bucket Challenge a few years ago raised major funding that resulted in the discovery of new genes connected to the disease. One of those genes is…

Opportunity to submit comments to FDA about NurOwn

September 8, 2023

On Wednesday, September 27, 2023, the FDA will host a public advisory committee meeting (AdComm) for BrainStorm Cell Therapeutics’ stem cell therapy NurOwn for the treatment of ALS.  The public…

My ALS Story – The Sy Ohana

September 7, 2023

In 2020, Elizabeth Sy was diagnosed with ALS. After learning more about the disease, the Sy family connected with ALS Golden West for services and support.  The Sy family also…

My ALS Story – Gary Jarrett and Family

September 4, 2023

Born in Canada, Gary Jarrett was the youngest of five kids who spent the majority of his childhood in Southern California. In 1973 the family moved to the Central Coast…

2023 ALS Awareness Day with Los Angeles Dodgers

August 29, 2023

Members of Southern and Central California’s ALS community enjoyed an evening of togetherness and awareness on Tuesday, August 29 at Dodger Stadium. Golden West partnered with the Los Angeles Dodgers…