Calendar
Calendar of Events
S Sun
M Mon
T Tue
W Wed
T Thu
F Fri
S Sat
0 events,
0 events,
1 event,
All-Chapter Loved Ones – ALS Online Support Group
All-Chapter Loved Ones – ALS Online Support Group
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
0 events,
0 events,
0 events,
2 events,
2023 SoCal Ride and Rally to Defeat ALS
2023 SoCal Ride and Rally to Defeat ALS
Join us for the Golden West Chapter's SoCal Ride and Rally to Defeat ALS! This is a community gathering dedicated to putting the brakes on ALS. Offering different bike routes of varying skill levels, as well as a family-friendly and wheelchair-accessible walk route, and finish line festival zone with food, entertainment, and an ALS Resource…
2023 Hope Lives: Art for ALS Opening Reception
2023 Hope Lives: Art for ALS Opening Reception
The 2nd Annual Hope Lives: Art for ALS exhibition is from May 2 - 26, 2023 at the San Francisco Women Artists Gallery (SFWA). Bay Area encaustic painter, Melissa Stephens created this educational fundraiser in support of her sister, Lynn Giovannelli, who was diagnosed with ALS in July 2020. Join us for the Opening Reception…
0 events,
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
2nd Monday each month, 1-2pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…
4 events,
Every 90 Minutes
Every 90 Minutes
Did you know that every 90 minutes, someone is diagnosed with ALS, and someone passes away from it? Most people who develop ALS are between the ages of 40 and 70, with an average age of 55. However, ALS also occurs in people in their 20’s and 30’s. May is ALS Awareness Month, and we…
All-Chapter ALS Online Support Group
All-Chapter ALS Online Support Group
Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org
ALS Golden West Community Group
ALS Golden West Community Group
Contact Care Managers Robin Eller, RCP at reller@alsagoldenwest.org or 661-364-1913, or Kathleen Kelsey, RCP at kkelsey@alsagoldenwest.org or 818-292-4315 for information on how to participate using Zoom!
San Fernando Valley Online Support Group
San Fernando Valley Online Support Group
Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsagoldenwest.org
5 events,
90% of cases have no known family history or genetic cause
90% of cases have no known family history or genetic cause
Did you know that 90% of people who are diagnosed with ALS are considered “sporadic”? This means that there is no previous family history of the disease. The remaining 10% of ALS cases are considered to be “familial” or genetic. May is ALS Awareness Month and we need people like YOU to share the facts…
Turlock/Central Valley Online Support Group
Turlock/Central Valley Online Support Group
Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsagoldenwest.org; 818-292-4315
Sonoma and Surrounding Counties Loved Ones Online Support Group
Sonoma and Surrounding Counties Loved Ones Online Support Group
Please Contact Facilitator: Sara Holiday at sholiday@alsagoldenwest.org or (707) 727-5151 for details on how to participate!
Toppers Pizza Night – Family Fundraiser
Toppers Pizza Night – Family Fundraiser
Join the Golden West Chapter and Mary Walton, who organized a post-event fundraiser for the SoCal Ride and Rally, at Toppers Pizza in Thousand Oaks on Wednesday, May 10, from 3:30 pm - 9:00 pm. 20% of pre-tax sales generated by anyone who shows this flyer will go towards our fundraising effort. A special thanks…
3 events,
10% of ALS cases are inherited through a mutated gene
10% of ALS cases are inherited through a mutated gene
Did you know that 10% of people who are diagnosed with ALS inherit the disease through a mutated gene? This is called “familial” ALS (FALS). In those families, there is a 50% chance each child will inherit the gene mutation and could develop ALS. In honor of ALS Awareness Month, we need people like YOU…
Trach and Vent Online Support Group
Trach and Vent Online Support Group
Contact Facilitators: Robin Eller, RCP: 661-364-1913 or reller@alsagoldenwest.org or Kathleen Kelsey, RCP: (818) 292-4315 or kkelsey@alsagoldenwest.org for more information about how to participate via Zoom.
Ventura County Caregiver Online Support Group
Ventura County Caregiver Online Support Group
Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsagoldenwest.org
1 event,
Military Personnel and Veterans are more likely to get ALS
Military Personnel and Veterans are more likely to get ALS
Did you know that people who have served in any branch of the military have a greater chance of developing ALS? It is known that military personnel and veterans are approximately twice as likely to develop ALS in their lifetime. May is ALS Awareness Month and we need people like YOU to share the facts…
3 events,
2023 Youth Action Day
2023 Youth Action Day
Challenging Youth to Join the Fight, Take Action, and Spread Hope. In May during ALS Awareness Month (and all throughout the year), The ALS Association and the Golden West Chapter celebrate ALS Youth Action Day to engage kids, teenagers, and young adults directly in the fight against ALS. Young supporters can take the ALS Youth…
Check Our Calendar
Check Our Calendar
Check our calendar for upcoming activities and events, like Youth Action Day and Hope Lives: Art for ALS happening TODAY, Saturday, 5/13; the training ride for Napa Valley @RidetoDefeatALS on Sunday, 5/14; the Golden West Chapter’s ASK ME: ALS Treatments and Therapies on Tuesday, 5/16, or any of our Chapter support groups. For more information…
2023 Hope Lives: Art for ALS – Wine Tasting & Ekphrastic Poetry Reading
2023 Hope Lives: Art for ALS – Wine Tasting & Ekphrastic Poetry Reading
The 2nd Annual Hope Lives: Art for ALS exhibition is from May 2 - 26, 2023 at the San Francisco Women Artists Gallery (SFWA). Bay Area encaustic painter, Melissa Stephens created this educational fundraiser in support of her sister, Lynn Giovannelli, who was diagnosed with ALS in July 2020. Join us for the Wine Tasting…
2 events,
Happy Mother’s Day
Happy Mother’s Day
All of us at The ALS Association Golden West Chapter wish all of the mothers, grandmothers, aunties, pet moms, maternal figures, and folks who love someone who is a mom, a very #HappyMothersDay! We are grateful and honor them all - whether they are living with #ALS, caring for, or have cared for someone battling…
Mother’s Day Training Ride – Napa Valley Ride to Defeat ALS
Mother’s Day Training Ride – Napa Valley Ride to Defeat ALS
Marin | Strawberry Point and Paradise Loop (counter-clockwise and returning via Corte Madera back to Mill Valley) | approx 24 miles, 1,056 ft climbing - Easy to Moderate Led by Team Captain of Team Viking, Erlend Bø, this training ride will meet at Mill Valley Book Depot (87 Throckmorton Ave, Mill Valley, CA 94941) at…
1 event,
Hawaii Signing of Proclamation
Hawaii Signing of Proclamation
All of us at The Golden West Chapter send a big mahalo to Governor Josh Green of Hawaii for signing the proclamation making May ALS Awareness and ALS Families Appreciation Month. Throughout #ALSAwarenessMonth, we are grateful to all who continue to raise #ALS awareness in #ourALScommunity, including our ohana in Hawaii. Help us change the…
6 events,
The estimated cost to develop a drug to slow or stop progression is $2 billion.
The estimated cost to develop a drug to slow or stop progression is $2 billion.
Did you know there are currently seven drugs approved by the FDA to treat ALS and its symptoms? The estimated cost to develop a drug to slow or stop progression is $2 billion. Studies all over the world, many funded by The ALS Association, are ongoing to develop more treatments and cures for ALS. Throughout…
Online Bereavement Support Group
Online Bereavement Support Group
An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsagoldenwest.org to participate via Zoom!
All-Chapter LGBTQIA+ ALS Online Support Group
All-Chapter LGBTQIA+ ALS Online Support Group
All LGBTQIA+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. Please feel free to contact group facilitator Daniel via phone, email, or text for information on how to attend via…
Online Bereavement Support Group
Online Bereavement Support Group
A monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsagoldenwest.org to participate via Zoom!
2 events,
Sonoma and Surrounding Counties ALS Online Support Group
Sonoma and Surrounding Counties ALS Online Support Group
Please Contact Facilitator: Sara Holiday at sholiday@alsagoldenwest.org or (707) 727-5151 for details on how to participate!
Grupo de apoyo en español de ELA / Spanish Language ALS Online Support Group
Grupo de apoyo en español de ELA / Spanish Language ALS Online Support Group
Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsagoldenwest.org
1 event,
Average life expectancy for a person after an ALS diagnosis is two to five years
Average life expectancy for a person after an ALS diagnosis is two to five years
Did you know that the average life expectancy for a person after an ALS diagnosis is two to five years? Further analysis shows that 50% of all people affected with ALS live at least three or more years after diagnosis. 20% of people living with ALS live five years or more, and as much as…
2 events,
Riverside County Online Support Group
Riverside County Online Support Group
Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org
Carson Online Support Group
Carson Online Support Group
Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsagoldenwest.org
3 events,
Walnut Creek/East Bay – ALS Online Support Group
Walnut Creek/East Bay – ALS Online Support Group
Contact Facilitator Margie Petrakis, RRT, RN, for information on how to participate: mpetrakis@alsagoldenwest.org
2023 Hope Lives: Art for ALS – ALS Family Awareness Day
2023 Hope Lives: Art for ALS – ALS Family Awareness Day
The 2nd Annual Hope Lives: Art for ALS exhibition is from May 2 – 26, 2023 at the San Francisco Women Artists Gallery (SFWA). Bay Area encaustic painter, Melissa Stephens created this educational fundraiser in support of her sister, Lynn Giovannelli, who was diagnosed with ALS in July 2020. Join us for the ALS Family…
Glendale Online Support Group
Glendale Online Support Group
Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsagoldenwest.org or 909-736-5677
0 events,
1 event,
2023 National ALS Hero, Pat Dolan
2023 National ALS Hero, Pat Dolan
As we continue #ALSAwarenessMonth, the Golden West Chapter is extremely proud to share that Pat Dolan has been selected to receive The ALS Association’s highest honor, the national 2023 Hero Award! The Hero Award recognizes and pays tribute to people living with #ALS who have made an indelible impact on the ALS community. Pat was…
1 event,
ALS Golden West Ventura/Santa Barbara County: Connect, Support, Chat
ALS Golden West Ventura/Santa Barbara County: Connect, Support, Chat
Contact Kathleen for information on how to join online using Zoom! Facilitator: Kathleen Kelsey, RCP 818-292-4315 or kkelsey@alsagoldenwest.org
3 events,
Calabasas Proclamation Signing
Calabasas Proclamation Signing
On Wednesday, 5/24, the Mayor of Calabasas, California, David Shapiro, will be signing a proclamation to recognize May as ALS Awareness Month in the city of Calabasas. Representatives from The ALS Association Golden West Chapter will be in attendance and will share a few remarks. Thank you to Mayor Shapiro and the Calabasas community for…
ALS Awareness Month is perfect time to sign up for our Walk to Defeat ALS events!
ALS Awareness Month is perfect time to sign up for our Walk to Defeat ALS events!
May is #ALSAwarenessMonth, and the perfect time to sign up for one (or more) of our Golden West Chapter Walk to Defeat ALS events! These family-friendly gatherings include wheelchair accessible walk routes, an ALS Resource Fair, entertainment, and a Festival Zone with activities for all ages. And if you cannot join in person, you can…
All-Hawaii ALS Online Support Group
All-Hawaii ALS Online Support Group
Please contact Regional Care Manager Rex for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsagoldenwest.org; 808-219-9036
2 events,
Pomona Online Support Group
Pomona Online Support Group
Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsagoldenwest.org
Palo Alto – ALS Online Support Group
Palo Alto – ALS Online Support Group
Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsagoldenwest.org
7 events,
An ALS diagnosis can take months or even years
An ALS diagnosis can take months or even years
Did you know that an ALS diagnosis can take months or even years? ALS is often diagnosed by ruling out other diseases. The initial symptoms of #ALS can be quite varied in different people. One person may have trouble grasping a pen or lifting a coffee cup, while another person may experience a change in…
SoCal Loved Ones Support Group
SoCal Loved Ones Support Group
Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsagoldenwest.org.
San Francisco and Surrounding Counties ALS Online Support Group
San Francisco and Surrounding Counties ALS Online Support Group
1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsagoldenwest.org
All-Chapter Support Group for Unpartnered People with ALS
All-Chapter Support Group for Unpartnered People with ALS
A chapter wide support group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsagoldenwest.org or 707-727-5151.
2 events,
San Luis Obispo – ALS Online Support Group
San Luis Obispo – ALS Online Support Group
Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsagoldenwest.org
John Gill Central Coast (Monterey Bay) ALS Support Group
John Gill Central Coast (Monterey Bay) ALS Support Group
Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsagoldenwest.org
0 events,
0 events,
0 events,
0 events,
0 events,
3 events,
2023 Lou Gehrig Day
2023 Lou Gehrig Day
Major League Baseball will honor the legacy of Lou Gehrig and all those who have been impacted by ALS throughout their 2023 season. The goal is to celebrate the ALS community and raise ALS awareness and support. The Golden West Chapter will commemorate Lou Gehrig Day on three different dates with our MLB partners. We…
2023 Lou Gehrig Day with the Los Angeles Dodgers
2023 Lou Gehrig Day with the Los Angeles Dodgers
Major League Baseball's Lou Gehrig Day celebrates the legacy of Lou Gehrig and all those impacted by the disease that bears his name. This league-wide, annual event began in 2021 and honors New York Yankees' first baseman, otherwise known as the Iron Horse, and helps raise awareness of ALS and support for the ALS community.…
2023 Lou Gehrig Day with the San Francisco Giants
2023 Lou Gehrig Day with the San Francisco Giants
The focus of the official Lou Gehrig Day is to honor the legacy of Lou Gehrig and all those lost to the disease that bears his name; to raise ALS awareness and funding; and to celebrate the ALS community. On Lou Gehrig Day, each home Club will host ceremonies and display “4-ALS” logos in ballparks,…
1 event,
The Bay Trail Training Ride – Napa Valley Ride to Defeat ALS
The Bay Trail Training Ride – Napa Valley Ride to Defeat ALS
In partnership with event sponsor XL Construction and led by Event Co-Chair Bruce Friedricks, we welcome you to join us at East Brother Beer Company in Pt. Richmond at 9:30 am PDT, to head out on the ride at 10:00 PDT sharp. For more details, check out the STRAVA route map. Join the group for…
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.
- There are no events on this day.