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Natalie Woody: Growing Up with My Dad and ALS

diciembre 20, 2022

ALS affects all people in the family – including kids. And while most ALS youth caregivers demonstrate amazing resilience and grace, they have complex experiences and feelings when living with…

Kayla Turochy: Lamar Helped Me Find My Voice

diciembre 15, 2022

Kayla met Lamar Woody back in 2017 at the music store where he taught voice and piano lessons. As her very first vocal coach, Lamar will always have a special…

Kristina Woody, Full-Time Nurse, Wife, Mother and ALS Caregiver

diciembre 12, 2022

Kristina met Lamar Woody in high school, although it wasn’t until college when they really found their true connection. Lamar loves to tell everyone Kristina was the prettiest girl in…

Lamar Woody and his family, Living with ALS

diciembre 10, 2022

Lamar and Kristina Woody are a lot like any other busy, hard-working couple. They’re juggling careers, education and the day-to-day activities of their sassy and smart nine-year-old daughter, Natalie. Married…

The Golden West Chapter to honor the California ALS Research Network with the Essey Commitment to Cures Award

diciembre 9, 2022

The Golden West Chapter will honor the members of the California ALS Research Network with the Essey Commitment to Cures Award at their Champions for Cures and Care celebration on…

Cytokinetics Presents Data at the Virtual 33rd International Symposium on ALS/MND

diciembre 8, 2022

SOUTH SAN FRANCISCO, Calif., Dec. 08, 2022 (GLOBE NEWSWIRE) — Cytokinetics, Incorporated (Nasdaq: CYTK) today announced that data were presented at the Virtual 33rd International Symposium on ALS/MND related to…

Foco en… Mary y John Patterson

diciembre 7, 2022

The 2020 Virtual Hawaii Walk to Defeat ALS is honoring Mary Patterson and her husband John with the ‘Ohana Award this year. Mary and John were very involved in raising…

ALS Association Fights for Access to RELYRVIO

diciembre 5, 2022

The ALS Association recently sent letters to 43 of the largest insurance companies and health care payers to make RELYVRIO, which was formerly developed as AMX0035 and approved by the…

A Tribute to Matt Chaney, Our Hero

noviembre 21, 2022

It is with a heavy heart that we share the sad news that Matt Chaney, Chapter Advisory Trustee and dear friend to many, died on November 11, 2022, after a…