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ALS Awareness Takes Center Court at NCAA Men’s Final Four and Championship

marzo 31, 2023

The San Diego State University (SDSU) Aztecs’ run in the NCAA Division I Men’s Basketball Tournament is historic for many reasons. It is the school’s first Final Four and Championship…

Cytokinetics Announces COURAGE-ALS Met Criteria for Futility at Second Interim Analysis

marzo 31, 2023

Cytokinetics recently announced the discontinuation of Phase 3 Clinical Trial of Reldesemtiv and thanks the people with ALS, caregivers, investigators, and clinical trial staff for their participation in COURAGE-ALS.

Brandon Crawford of the San Francisco Giants Wins Phi Delta Theta Fraternity’s Lou Gehrig Memorial Award

marzo 26, 2023

Brandon Crawford of the San Francisco Giants has won this year’s Lou Gehrig Memorial Award, sponsored by the Phi Delta Theta International Fraternity, headquartered in Oxford, Ohio. Phi Delta Theta…

Here’s Why FDA Committee’s Recommendation on Tofersen Matters to Everyone

marzo 24, 2023

The FDA advisory committee vote on tofersen Wednesday was an exciting and critical moment in the ALS community’s efforts to find new treatments and cures. The committee voted unanimously to…

FDA Committee Unanimously Recommends Accelerated Approval of Tofersen

marzo 22, 2023

The FDA Peripheral and Central Nervous System Drugs Advisory Committee voted 9-0 that a reduction in plasma neurofilament light (NfL) concentration is “reasonably likely” to predict clinical benefit of tofersen…

Genetics and My ALS

marzo 17, 2023

By Larry Falivena Larry Falivena is a member of The ALS Association’s Board of Trustees and is living with ALS. Today, he is sharing his unique experience with the disease…

Congressional “Dear Colleague” Letter Circulated to Increase Federal Funding for ALS

marzo 16, 2023

The U.S. House and Senate are preparing legislation that determines how much will be spent on research. It’s important that ALS research requests are at the top of the “must…

Celebrating women making a difference in the fight against ALS

marzo 10, 2023

Women’s History Month (WHM) has been observed in the United States every March since 1987, and is dedicated to raising awareness of women’s contributions to history, culture, and society. A…

Remembering Judy Heumann, disability rights leader (1947-2023)

marzo 8, 2023

The Golden West Chapter joins the world in mourning and celebrating the life and legacy of disability rights activist Judith “Judy” Heumann, who died March 4, 2023. Known as the…