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FDA Grants Accelerated Approval for QALSODY™ (tofersen) for SOD1-ALS, a Major Scientific Advancement as the First Treatment to Target a Genetic Cause of ALS

abril 25, 2023 Comentarios desactivados en FDA Grants Accelerated Approval for QALSODY™ (tofersen) for SOD1-ALS, a Major Scientific Advancement as the First Treatment to Target a Genetic Cause of ALS

CAMBRIDGE, Mass., April 25, 2023 (GLOBE NEWSWIRE) — Biogen Inc. (Nasdaq: BIIB) announced today that the U.S. Food and Drug Administration (FDA) has approved QALSODY™ (tofersen) 100 mg/15mL injection for…

Critical Importance of FDA AdComm Meeting for ALS Therapy NurOwn

abril 3, 2023 Comentarios desactivados en Critical Importance of FDA AdComm Meeting for ALS Therapy NurOwn

NurOwn (BrainStorm Cell Therapeutics) is an investigational therapy made up of autologous mesenchymal stromal cells secreting neurotrophic factors cells (MSC-NTF) for the potential treatment of amyotrophic lateral sclerosis (ALS) and…

Cytokinetics Announces COURAGE-ALS Met Criteria for Futility at Second Interim Analysis

marzo 31, 2023 Comentarios desactivados en Cytokinetics Announces COURAGE-ALS Met Criteria for Futility at Second Interim Analysis

Cytokinetics recently announced the discontinuation of Phase 3 Clinical Trial of Reldesemtiv and thanks the people with ALS, caregivers, investigators, and clinical trial staff for their participation in COURAGE-ALS.

Bay Area theater director perservering with ALS

marzo 7, 2023 Comentarios desactivados en Bay Area theater director perservering with ALS

East Bay theater director Erin Merritt is living with the debilitating effects of ALS, the degenerative nervous system disorder also known as Lou Gehrig’s Disease. Even though she struggles to…

Bay Area theater community rallies behind ailing director

marzo 7, 2023 Comentarios desactivados en Bay Area theater community rallies behind ailing director

Erin Merritt has been a powerful force in Bay Area theater for decades, as a director, actor, producer and as someone who all-around makes things happen. Founder of the all-female…

Director battling ALS brings show to SF stage with tech assist

marzo 2, 2023 Comentarios desactivados en Director battling ALS brings show to SF stage with tech assist

This Bay Area artist has ALS and can’t speak — but she’s still directing her dream project

marzo 1, 2023 Comentarios desactivados en This Bay Area artist has ALS and can’t speak — but she’s still directing her dream project

A year ago, Erin Merritt stopped being able to sing in tune during her car karaoke. Then the El Cerrito director, who has been working in Bay Area theater for…

Links found between viruses and neurodegenerative diseases

febrero 14, 2023 Comentarios desactivados en Links found between viruses and neurodegenerative diseases

Neurodegenerative diseases can damage different parts of the nervous system, including the brain. This may lead to problems with thinking, memory, and/or movement. Examples include Alzheimer’s disease (AD), multiple sclerosis…

Study: Implicit Bias, Late Diagnosis Create Critical ALS Healthcare Gap

febrero 13, 2023 Comentarios desactivados en Study: Implicit Bias, Late Diagnosis Create Critical ALS Healthcare Gap

Neurology fellow finds diagnostic delays in Black ALS patients prevents life-altering therapies. It was only his first visit to a hospital’s ALS clinic, but already the Black patient’s amyotrophic lateral…

USC Stem Cell-led studies point the way to broadly effective treatments for ALS

febrero 6, 2023 Comentarios desactivados en USC Stem Cell-led studies point the way to broadly effective treatments for ALS

Each year in the U.S., 5,000 patients receive a diagnosis of ALS, an incurable neurodegenerative disease that will likely kill them within two to five years. In the quest to…