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We continue to press Cigna to reverse course and make Relyvrio treatment available for people living with ALS on Cigna plans. While Cigna initially revised its policy, those changes were…
The ALS Association recently submitted a series of regulatory filings to reduce administrative burdens placed on people living with ALS. The filings are in support of administrative rule changes at…
Since 1996, the Sheila Essey Award for ALS Research has been presented to acknowledge and honor an individual who is making significant contributions and breakthroughs in the search for the…
Brandon Crawford of the San Francisco Giants has won this year’s Lou Gehrig Memorial Award, sponsored by the Phi Delta Theta International Fraternity, headquartered in Oxford, Ohio. Phi Delta Theta…
The U.S. House and Senate are preparing legislation that determines how much will be spent on research. It’s important that ALS research requests are at the top of the “must…
The ALS Association filed a formal objection to health insurer CIGNA for the company’s decision to exclude Relyvrio from its formulary as part of our continued fight to ensure access…
The ALS Association is launching an ambitious slate of federal and state policy priorities for 2023. The priorities build upon the successes achieved and focus on augmenting our work to…
For the second year in a row, Bitcoin enthusiasts, athletes of all abilities, and supporters of the ALS/MND community around the world joined forces with the Golden West Chapter of…
The ALS Association recently sent letters to 43 of the largest insurance companies and health care payers to make RELYVRIO, which was formerly developed as AMX0035 and approved by the…
Submit you comment HERE. Seat elevation systems in power wheelchairs help people living with ALS, but Medicare does not cover these important mobility devices. After three years of requests from The…
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