People

Celebrating women making a difference in the fight against ALS

March 10, 2023 Comments Off on Celebrating women making a difference in the fight against ALS

Women’s History Month (WHM) has been observed in the United States every March since 1987, and is dedicated to raising awareness of women’s contributions to history, culture, and society. A…

Remembering Judy Heumann, disability rights leader (1947-2023)

March 8, 2023 Comments Off on Remembering Judy Heumann, disability rights leader (1947-2023)

The Golden West Chapter joins the world in mourning and celebrating the life and legacy of disability rights activist Judith “Judy” Heumann, who died March 4, 2023. Known as the…

From One ALS Family to Another

January 27, 2023 Comments Off on From One ALS Family to Another

By Kristina Woody In 2022, we shined a spotlight on the Woody family, providing a glimpse into their everyday life with ALS from many different perspectives. This year, we’ve invited…

Legendary Bitcoin pioneer and activist inspires runners around the world to defeat ALS in second annual Running Bitcoin Challenge

January 20, 2023 Comments Off on Legendary Bitcoin pioneer and activist inspires runners around the world to defeat ALS in second annual Running Bitcoin Challenge

For the second year in a row, Bitcoin enthusiasts, athletes of all abilities, and supporters of the ALS/MND community around the world joined forces with the Golden West Chapter of…

Honoring the Legacy of Stephen Hawking: Reading for the Stars to Help Fight ALS

January 7, 2023 Comments Off on Honoring the Legacy of Stephen Hawking: Reading for the Stars to Help Fight ALS

Stephen Hawking, the world-renowned British scientist, professor, and author, is regarded as one of the most brilliant theoretical physicists in history. From the Big Bang to black holes, his work on…

Natalie Woody: Growing Up with My Dad and ALS

December 20, 2022 Comments Off on Natalie Woody: Growing Up with My Dad and ALS

ALS affects all people in the family – including kids. And while most ALS youth caregivers demonstrate amazing resilience and grace, they have complex experiences and feelings when living with…

Kayla Turochy: Lamar Helped Me Find My Voice

December 15, 2022 Comments Off on Kayla Turochy: Lamar Helped Me Find My Voice

Kayla met Lamar Woody back in 2017 at the music store where he taught voice and piano lessons. As her very first vocal coach, Lamar will always have a special…

Kristina Woody, Full-Time Nurse, Wife, Mother and ALS Caregiver

December 12, 2022 Comments Off on Kristina Woody, Full-Time Nurse, Wife, Mother and ALS Caregiver

Kristina met Lamar Woody in high school, although it wasn’t until college when they really found their true connection. Lamar loves to tell everyone Kristina was the prettiest girl in…

Lamar Woody and his family, Living with ALS

December 10, 2022 Comments Off on Lamar Woody and his family, Living with ALS

Lamar and Kristina Woody are a lot like any other busy, hard-working couple. They’re juggling careers, education and the day-to-day activities of their sassy and smart nine-year-old daughter, Natalie. Married…

A Tribute to Matt Chaney, Our Hero

November 21, 2022 Comments Off on A Tribute to Matt Chaney, Our Hero

It is with a heavy heart that we share the sad news that Matt Chaney, Chapter Advisory Trustee and dear friend to many, died on November 11, 2022, after a…