Care

Feeding Tubes for People Living With ALS: Clearing up Some Misconceptions

February 7, 2023 Comments Off on Feeding Tubes for People Living With ALS: Clearing up Some Misconceptions

For many people living with ALS, the decision to have a feeding tube placed, if or when it’s needed, is an important one, and as with many decisions that must…

ALS Association Fights for Access to RELYRVIO

December 5, 2022 Comments Off on ALS Association Fights for Access to RELYRVIO

The ALS Association recently sent letters to 43 of the largest insurance companies and health care payers to make RELYVRIO, which was formerly developed as AMX0035 and approved by the…

Medicare Open Enrollment Begins October 15—Understanding Your Options

October 11, 2022 Comments Off on Medicare Open Enrollment Begins October 15—Understanding Your Options

Medicare open enrollment begins this Saturday, the period when individuals may add, drop, or make changes to their health insurance coverage, with selections remaining in effect for the next full…

Pat Dolan: Mapping the future of ALS Care, Cures, and Community

August 19, 2022 Comments Off on Pat Dolan: Mapping the future of ALS Care, Cures, and Community

When Pat Dolan was diagnosed with ALS in July 2016, he knew the life he thought he had planned would be forever changed. He and Mara, his wife of 24…