Advocacy

ALS Association Calls on CIGNA to Reverse Course and Make Relyvrio Available

February 9, 2023 Comments Off on ALS Association Calls on CIGNA to Reverse Course and Make Relyvrio Available

The ALS Association filed a formal objection to health insurer CIGNA for the company’s decision to exclude Relyvrio from its formulary as part of our continued fight to ensure access…

ALS Association Announces 2023 Federal and State Public Policy Priorities

February 3, 2023 Comments Off on ALS Association Announces 2023 Federal and State Public Policy Priorities

The ALS Association is launching an ambitious slate of federal and state policy priorities for 2023. The priorities build upon the successes achieved and focus on augmenting our work to…

Legendary Bitcoin pioneer and activist inspires runners around the world to defeat ALS in second annual Running Bitcoin Challenge

January 20, 2023 Comments Off on Legendary Bitcoin pioneer and activist inspires runners around the world to defeat ALS in second annual Running Bitcoin Challenge

For the second year in a row, Bitcoin enthusiasts, athletes of all abilities, and supporters of the ALS/MND community around the world joined forces with the Golden West Chapter of…

ALS Association Fights for Access to RELYRVIO

December 5, 2022 Comments Off on ALS Association Fights for Access to RELYRVIO

The ALS Association recently sent letters to 43 of the largest insurance companies and health care payers to make RELYVRIO, which was formerly developed as AMX0035 and approved by the…

Tell Medicare Why Seat Elevation Matters to You

August 15, 2022 Comments Off on Tell Medicare Why Seat Elevation Matters to You

Submit you comment HERE. Seat elevation systems in power wheelchairs help people living with ALS, but Medicare does not cover these important mobility devices. After three years of requests from The…

The Fight to Make Air Travel Accessible for All

August 4, 2022 Comments Off on The Fight to Make Air Travel Accessible for All

It’s that time of year again when millions of Americans across the nation are making their plans to travel to be with family and friends to celebrate the holidays. While…