Month: September 2023

2023 Napa Valley Ride to Defeat ALS and Walk

September 29, 2023 Comments Off on 2023 Napa Valley Ride to Defeat ALS and Walk

Watch the event programming of the Napa Valley Ride to Defeat ALS and Walk sponsored by our Accessibility and Inclusivity Sponsor, Mitsubishi Tanabe Pharma America.

My ALS Story – The Borba Family

September 22, 2023 Comments Off on My ALS Story – The Borba Family

Luis Borba was admired by many and was often referred to as “Uncle Louie,” from many family and friends. Luis developed a life in the Central Valley, and worked on…

Celebrating Tom Horton and Paddling to Defeat ALS

September 8, 2023 Comments Off on Celebrating Tom Horton and Paddling to Defeat ALS

Our deepest gratitude to Golden West supporter Tom Horton, who participated in his 17th Catalina Classic Paddleboard Race to Defeat ALS on August 27, 2023. The annual Catalina Classic Paddleboard…

Mapping the CDC National ALS Registry

September 8, 2023 Comments Off on Mapping the CDC National ALS Registry

At the annual National ALS Registry Research Symposium, hosted by the Centers for Disease Control and Prevention (CDC), there was a special presentation on mapping to better understand the registry’s…

‘New’ ALS gene destabilizes neuron’s structure and nucleus

September 8, 2023 Comments Off on ‘New’ ALS gene destabilizes neuron’s structure and nucleus

The viral ALS Ice Bucket Challenge a few years ago raised major funding that resulted in the discovery of new genes connected to the disease. One of those genes is…

Opportunity to submit comments to FDA about NurOwn

September 8, 2023 Comments Off on Opportunity to submit comments to FDA about NurOwn

On Wednesday, September 27, 2023, the FDA will host a public advisory committee meeting (AdComm) for BrainStorm Cell Therapeutics’ stem cell therapy NurOwn for the treatment of ALS.  The public…

My ALS Story – The Sy Ohana

September 7, 2023 Comments Off on My ALS Story – The Sy Ohana

In 2020, Elizabeth Sy was diagnosed with ALS. After learning more about the disease, the Sy family connected with ALS Golden West for services and support.  The Sy family also…

My ALS Story – Gary Jarrett and Family

September 4, 2023 Comments Off on My ALS Story – Gary Jarrett and Family

Born in Canada, Gary Jarrett was the youngest of five kids who spent the majority of his childhood in Southern California. In 1973 the family moved to the Central Coast…